Sydney went in for her EGD, still not sure what that stands for, but her GI, Pulmonologist, and ENT were all going in to check out her chest, lungs, throat and all that fun stuff and take some biopsies and look around with a camera. They were also going to put a PH probe in for a couple days to measure her acid movement. It kind of like an NG tube with little computers all over it that read things.
The EGD showed she had gunk in her lungs that will be treated with meds. They biopsied her esophagus and a couple weeks later was diagnosed with EE Eosinophilic Esophagitis. It took me an entire day to be able to say that one. She from what I understand is allergic to certain food and it is hurting her esophagus. While they were in there rather than doing the PH probe they took out her tonsils.
The next day she had an MRI to see if the things we thought were seizures maybe were strokes. But due to the double day sedation she had some breathing difficulties during that, but they were able to finish the test. No strokes. Good to know, but were hoping that would explain the regression in skills.
This was really tough on her!!! She had had tubes in and out of her throat and then the tonsils so they were double sore. She didn't understand why she was hurting and wouldn't eat anything by mouth to sooth it. She did a lot of crying and the best remedy was snuggling. Carter was sweet with her. About a week and a half later she started perking up!!! Glad that one is all done!
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