Swallow Study Sydney Update

This was the beginning.  It was observed that Sydney had had a cough since early Jan/ Feb.  Also skills were digressing. She was acting sporadically and her behavior was impulsive.  Her talking was regressing and we were hearing random babbling and she was using more signs.  Rather than reading a book she would pound it on the floor or wall, or little sister walking by.  Same with toys, she just needed serious body input.  She was off, her attention, her frustration  and  our concurs were elevating.  All of the above.  So, we called her army of Drs and things started rolling.  We were sent for a swallow study. Then we were to meet with a rotation of her GI, ENT, and Pulmonogist one day and the next go and be admitted for what ever tests they  needed.  Which is great to not have to wait weeks for scheduling.  Nuro ordered an MRI to check to see if maybe her seizures in Jan/Feb were really strokes.  

Here is Sydney having her swallow study, they have her drink different thicknesses of barium and watch on the x-ray as it goes down to see if she is aspirating into her lungs.  They start with water thinness then nectar and then move to honey then double honey and finally pudding thickness.  We left having the safe thickness of double honey, nothing thinner.  Which makes cup and sippy drinking tricky.  She also showed severe reflux.  We have had issues with both of those things years early but not since.