What Now?

So with the last couple months this is how we are currently . . . happy, sweet, and amazingly strong and . . .
mitochondrial disease - after Atlanta we have a good new Dr. that will follow her and watch if needed.  With this disease, there isn't a cure, you treat symptoms as they come and can try small things to slow it down.  We are involved in a Mitochondrial group that is doing a fundraiser and walk in Nov.  if anyone wants to come walk with us, we would love it, let us know.  Anything to show this little one she army she has supporting her would be great.
EE - we have done the allergy tests, and will meet with the allergist next week to hopefully get an "approved foods" list.  From that list they will possibly add a fruit, vegetable, and a grain.  Then she will have a repeat EGD in a month and see if her throat did ok and if so add more or take away.  But this is all depending on the results of the biopsy that will be back in a week or two.  They have to make sure the eosinophils have calmed down.  If so we will hope fully add back oats and apples or something. 
Development - she has calmed down a little, her talking has started to come back more and she isn't pounding as much.  The giant trampoline in our family room has helped that.  We are waiting to maybe approved for an iPad to help with communication hopefully this summer.
Swallowing - her aspiration maybe be an issue, or the EE may have caused that.  She will do another barium swallow in a month or so.  But in the mean time we will still limit most liquids.
Dog - on the waiting list for the canine assistance.  May have 4 years still.  I have 4 years to work on Neil letting us get a dog and do the allergy shots to try and lesson that reaction.
Allergy - We will get the approved list and start the allergy shots for the outside allergens.  THat is a weekly shot she'll get and then you sit and wait for an hour to make sure she doesn't have a reaction.  They will do that weekly for the first year and then less the years to follow.
Seizures - They are amazingly quiet right now.  They EEG we did didn't show any small seizures going on so that is good!  If they start again, there is a little wiggly room on meds.  But hopefully they'll stay away.  
GA Type 1 - her genetic disorder, she is on her low protein diet for this one.  This has special precessions more when she gets sick.  If she gets de-hydrated is when issues arise here.  She avoids soy and other things, but right now, this too is not presenting strongly.  We just keep watching and a blood test each month helps to monitor levels.

I think that is all. . . if it isn't, it is enough!  We love this little girl more than words can express and would take this all away in a heart beat if we could, but she blessed our lives daily.  I am loving watching Carter get a little more aware and protective of her.  We love to see Kate look up to Sydney and Sydey continues to learn from watching Kate.  The Lord had a plan when he created our family and for that we are grateful! Thank you for all the love and support we get from all of you, amazing family and friends make things do able!!