About a month ago we started getting reports from Atlanta. It has been a bit of a crazy month trying to get all the doctors on the same page. Lots of brilliant men and there different opinions on top of them just being men has been almost more than I can handle. But thank goodness for our wonderful pediatrician that has spend literally hours on the phone with them all helping to keep them focused!
I will give a better update here in the next couple weeks. But in a nut shell they feel Sydney has something called GA type 1. There is a longer name, but I can't find the paper with it on there. Kids with that don't tend to have seizures. So we are being admitted to the hospital today and she is being hooked up to an EEG and having her meds removed so we can catch what we have known as seizures on a scan. I am guessing we'll be there for the week, and hope to be able to learn more about everything. There is possibly something besides the GA1 and this will be helpful to point out the needed direction for doctors to look.
We are feeling very blessed that all though we are cutting everything close to when this baby is coming we are getting so much information that is helpful to both Sydney and the baby.
So glad you're getting some answers. I had to look up what GA type 1 is - to me it looks promising...like they could actually help sweet Sydney. Yay for answers - praying for you all.
ReplyDeleteHope the pregnancy is going well...
I am so glad that you are getting some answers. How wonderful to have such great doctors. I am anxious to hear more as you find out more. I hope you and the baby are doing really well. I miss you!
ReplyDeleteGood luck with the hospital stay. Hope you continue to get answers!
ReplyDeleteI hope you guys are doing well in the hospital. I am praying for sweet little Sydney, you and your family. I will miss you guys tomorrow.
ReplyDeleteYou are amazing! We will be praying for you! (I am back in the valley. I would love to get together.)
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