Sydney can trump my schedule and clear my calendar faster than anyone! Not that this would be her first choice of activities! She had gone in for IV's the previous week for dehydration due to a blocked up intestine. During our week she did a cleanse, which fixed the intestine but had little hiccups here and there. She also has been having some tensing of her feet and hands which causes a lot of pain. They are calling it possible distonia. We are still waiting for test results to figure out if we can learn exactly what is going on. In the mean time we are trying our best to keep her comfortable and happy.
Dads wonderful boss kicked him out when he heard about Sydney in the hospital and Grandpas death so it was a treat to have Neil come and play with us for a couple hours. I think it was the best visit and longest visit ever!!! We learned to appreciate it even more when Carter & Neil got the flu and were unable to visit us the rest of the stay! 
Whit was in town and came to visit one night, I don't think she realizes the help she was that night as Sydney had a tensing episode that went until 4:30 am with not much help from drugs. She brought me dinner and helped by holding Sydney and talking to me well into the night. Between her and Sandra bringing me clothes and supplies we survived another stay at PCH!
One day we were off precautions so we could leave our room. Sydney was delighted to be able to take a ride down to the play room. Unfortunately the next day we were back on room bound precautions. We got pretty creative with that wagon in a small room. 
This stay was a little different when my Grandpa passed away the second day we were in the hospital. I have never left Sydney before, but with our two wonderful nurses that work with Sydney at home came and stayed with her so I was able to go to the viewing and the funeral. Thank you, thank you, thank you!! I didn't worry at all while I was gone about how she was doing!
Whit was in town and came to visit one night, I don't think she realizes the help she was that night as Sydney had a tensing episode that went until 4:30 am with not much help from drugs. She brought me dinner and helped by holding Sydney and talking to me well into the night. Between her and Sandra bringing me clothes and supplies we survived another stay at PCH!
One day we were off precautions so we could leave our room. Sydney was delighted to be able to take a ride down to the play room. Unfortunately the next day we were back on room bound precautions. We got pretty creative with that wagon in a small room. 
This stay was a little different when my Grandpa passed away the second day we were in the hospital. I have never left Sydney before, but with our two wonderful nurses that work with Sydney at home came and stayed with her so I was able to go to the viewing and the funeral. Thank you, thank you, thank you!! I didn't worry at all while I was gone about how she was doing!
We appreciate all the love and prayers we received while in the hospital! It was an intense week, but hopefully answers will come from it. We are thrilled even though Sydney is unable to walk she is as happy as ever!!! She is a trooper!
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